List of people with amyotrophic lateral sclerosis

This is a list of notable people who have or had amyotrophic lateral sclerosis (ALS).

Astrophysicist Stephen Hawking, whose ALS was diagnosed in 1963, had ALS for 55 years, the longest recorded time. He died at the age of 76 in 2018.

Cartoonist Stephen Hillenburg, whose ALS was diagnosed in 2017, the creator of SpongeBob SquarePants. He died at the age of 57 in 2018.

• Pietro Anastasi (1948–2020), Italian football (soccer) player[1]
• Ady Barkan (born 1983), American lawyer and political activist[2]
• Jason Becker (born 1969), American musician, songwriter and composer[3]
• Giovanni Bertini (1951–2019), Italian football (soccer) player[4]
• Stefano Borgonovo (1964–2013), Italian football (soccer) player[5]
• Rob Burrow (born 1982), English rugby league player[6]
• Ben Byer (1971–2008), American playwright, subject of the film Indestructible, documenting his life post-diagnosis
• Jeff Capel II (1953–2017), American basketball coach[7]
• Marián Čišovský (1979-2020), Slovak football (soccer) player[8]
• Dwight Clark (1957–2018), American football (gridiron) player[9]
• Rickey Dixon (born 1966), American football (gridiron) player
• Jenifer Estess (1963–2003), American theatre producer and activist, subject of HBO film Jennifer; founding member of Project ALS
• Lou Gehrig (1903–1941), American baseball player, after whom the disease is commonly referred
• Steve Gleason (born 1977), American football (gridiron) player[10]
• Tim Green (born 1963), American football (gridiron) player, commentator and author
• Stephen Hawking (1942–2018), English theoretical physicist, cosmologist and author of several books on astrophysics, including A Brief History of Time
• Stephen Hillenburg (1961–2018), American animator, voice actor, and marine science educator, creator of SpongeBob SquarePants[11]
• Catfish Hunter (1946–1999), American baseball player[12]
• Derrick Jensen (1956–2017), American football (gridiron) player
• Jaan Kaplinski (born 1941), Estonian author, translator, philosopher, and culture critic [13]
• Fernando Ricksen (1976-2019), Dutch football (soccer) player [14]
• Kim Shattuck (1963–2019), American singer and songwriter (The Muffs)[15]
• Charles Mingus (1922-1979), American jazz composer and bandleader.
• Tim Shaw (born 1984), American football (gridiron) player
• Sam Shepard (1943–2017), American actor and playwright[16]
• Gianluca Signorini (1960–2002), Italian football (soccer) player[17]
• Kyousei Tsukui (born 1961), Japanese voice actor[18]
• Dmitri Vasilenko (1975–2019), Russian gymnast[19]
• Doddie Weir (born 1970), Scottish rugby union player[20]
• Joost van der Westhuizen (1971–2017), South African rugby union player[21]

See also

• List of NFL Players with ALS

References

1. "Il figlio di Anastasi: "Papà aveva la Sla, ha chiesto la sedazione assistita"" [Anastasi's son: "Dad had ALS, he asked for palliative sedation"] (in Italian). Ansa. 19 January 2020. Retrieved 21 January 2020.
2. Singer, Jenny (2018-11-11). "Ady Barkan Will Die for Your Sins: Meet the Man Giving His Last Breath to Democracy". The Forward. Retrieved 11 February 2019.
3. "Exclusive: Guitarist Jason Becker, Who Suffers From ALS, Calls Ice-Bucket Trend 'Amazing'". 28 August 2014. Retrieved 1 April 2020.
4. "Un'altra vittima della Sla: è morto Giovanni Bertini" [Another victim of ALS: Giovanni Bertini has died]. La Gazzetta dello Sport (in Italian). 3 December 2019. Retrieved 3 December 2019.
5. "Stefano Borgonovo muore a 49 anni. Da tempo era malato di Sla" [Stefano Borgonovo dies at 49. He had been suffering from ALS for some time] (in Italian). La Gazzetta dello Sport. 27 June 2013. Retrieved 8 January 2015.
6. "Rob Burrow: Leeds Rhinos legend diagnosed with motor neurone disease". 2019-12-19. Retrieved 2020-01-09.
7. Capel, Jeff. "The Tree". The Players' Tribune. Retrieved 26 January 2017.
8. "Marian Cisovsky: Emotional defender celebrates Czech title win". BBC Sport. 20 May 2015. Retrieved 19 June 2017.
9. Mano, Daniel (March 19, 2017). "49ers legend Dwight Clark announces ALS diagnosis". The Mercury News. Retrieved March 19, 2017.
10. Kenny, Glenn (2016-07-28). "Review: In 'Gleason,' a Devastating Diagnosis Prompts a New Mission". The New York Times. ISSN 0362-4331. Retrieved 2020-05-26.
11. Wallenstein, Andrew; Wallenstein, Andrew (2017-03-13). "'SpongeBob SquarePants' Creator Stephen Hillenburg Reveals ALS Diagnosis". Variety. Retrieved 2020-01-09.
12. http://webnc.alsa.org/site/PageNavigator/NC_2_catfishhunter.html
13. Kiiser, Vilja (2020-06-12). "Jaan Kaplinski: mul on diagnoositud ränk haigus ja huvitav on jälgida selle progressi" (in Estonian). Eesti Päevaleht. Retrieved 11 June 2020.
14. https://www.bbc.com/sport/football/49740638
15. https://www.rollingstone.com/music/music-news/kim-shattuck-muffs-dead-obituary-894132/
16. Deb, Sopan (July 31, 2017). "Sam Shepard, Pulitzer-Winning Playwright and Actor, Is Dead at 73". The New York Times.
17. "Calcio, morto Signorini, bandiera del Genoa" [Football, Signorini dead, symbol of Genoa]. Il Corriere della Sera (in Italian). 6 November 2002. Retrieved 31 March 2016.
18. "Voice Actor Kyousei Tsukui Reveals ALS Diagnosis". Anime News Network. Retrieved 9 January 2020.
19. "«Я еще живой!»". Федерации спортивной гимнастики России. Retrieved 3 November 2019.
20. "Doddie Weir diagnosed with motor neurone disease". BBC Sport. Retrieved 20 June 2017.
21. Doctor confirms Joost's fears, 2014-08-22