Davis Phinney Foundation

The Davis Phinney Foundation is a non-profit with a mission to help people with Parkinson's live well with the disease. It was founded in 2004 by Davis Phinney, the former professional road bicycle racer and Olympic medal winner.[1] Today, Davis is an inspirational figure in the cycling community and people living with Parkinson's (estimated 60,000 Americans and estimated 10 million worldwide).[2]

Davis Phinney Foundation
Founded2004
FounderDavis Phinney
20-0813566
FocusParkinson's disease information and tools for living well
Location
Key people
Davis Phinney (Founder & Director) Connie Carpenter-Phinney (Board Chair)
Polly Dawkins (Executive Director)
Chris Brewer (Director of Development)
Websitehttp://www.davisphinneyfoundation.org/

The Foundation is a 501(c)3 public charity that functions without an endowment and depends on donations from individuals, foundations and corporations. It reaches an international audience through its programs and online programming.[3]

History

As an Olympic Bronze medalist and Tour de France stage winner, Davis Phinney has celebrated the most victories of any cyclist in American history. From the late 1970s until his retirement from professional cycling in 1993, Davis achieved more wins – 328 victories in all – than any other US Cyclist. Davis is one of only three Americans who have won multiple stages of the Tour de France.[4] Greg LeMond and Lance Armstrong are the other two.[5]

In 2000, Davis was 40 when he was diagnosed with young-onset Parkinson's disease after years of feeling “off."[6][1] Shortly after his Parkinson's diagnosis, Davis and his family moved to Italy.[7] While living there, Davis was contacted by Kathleen Krumme, a cyclist who asked Davis to let her use his name in conjunction with her ride (the Sunflower Revolution) to benefit Parkinson's. From this connection, the Davis Phinney Foundation was born.[8]

Davis realized there were many ways he could improve the quality of his daily life with Parkinson's, including through exercise. He started the Davis Phinney Foundation as a way to fund and advance research that demonstrates the benefits of exercise, speech therapy, and other behavioral elements that are critical to quality of life with Parkinson's. It has since expanded to include a variety of programming that helps people with Parkinson's take a more active role in their own care.[9]

Programs
  • The Victory Summit symposia series brings together people in local Parkinson's communities for a day of inspiration and learning. The seminars include presentations by researchers, clinicians, and physical therapists who share the latest information and tools that people with Parkinson's can use to enhance their quality of life. The Victory Summit symposia are free and available to anyone who would like to participate.[10]
  • Every Victory Counts is a manual on living well with Parkinson's, created by the foundation. It is meant to inform and inspire people living with the disease, care partners and family members to take control of their Parkinson's treatment via proactive self-care. The Every Victory Counts manual is free of charge to individuals and is available upon request.[11]
  • The Living Well Challenge is a free, educational webinar series that features neurologists and other movement disorder experts speaking on topics of interest to people affected by Parkinson's disease. New videos air bi-monthly on the Davis Phinney Foundation website.[12]
  • Parkinson's Exercise Essentials: Getting Started, Staying Motivated, and Seeing Results, is an instructional DVD on exercising with Parkinson's disease. The DVD includes workouts that can be performed at home, in a fitness center or in the community. The workouts include guidance and adaptations for a range of ages and stages of Parkinson's, from diagnosis through advanced stages of the disease. The free DVD can be ordered on the Davis Phinney Foundation website.[13]

Research

The Davis Phinney Foundation funds research that explores a range of factors that affect quality of life. Its primary interest is in funding research related to exercise; however, it has also funded research in depression, telemedicine, deep brain stimulation and speech.[9] The tendency is to fund smaller, innovative studies that lead to proof of concept and greater funding from larger institutions, such as the National Institute of Health and the Michael J. Fox Foundation.[14]

Fundraising Activities

The Foundation's grassroots fundraising initiative, The Victory Crew, raises funds and awareness for Parkinson's disease. Victory Crew members turn all types of events and activities, from bike rides and runs, to mountain climbs, to sales of original works of art into fundraisers benefiting the Foundation. The Davis Phinney Foundation also has a Pay It Forward initiative tied to The Victory Summit symposia, wherein attendees of the free events are asked to donate in order to fund future events. Fully 81% of the Foundation's revenue is devoted to funding program services.[15]

Location

The Davis Phinney Foundation is located at 4730 Table Mesa Drive, Suite J-200 Boulder, Colorado. The Foundation can be reached by telephone at 303-733-3340 or toll-free at 1-866-358-0285. Hours of operation: Monday – Friday, 9:00 am – 5:00 pm (MT).

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References
  1. "Davis Phinney's Memoir Offers Information and Inspiration for Living Well with Parkinson's Disease". PRNewswire. 16 May 2011.
  2. "Statistics on Parkinson's". Parkinson's Disease Foundation. Retrieved 11 October 2014.
  3. "Collaborations". Ride The Rockies: The Denver Post. Retrieved 11 October 2014.
  4. "Congratulations to Davis Phinney, recipient of the 2014 Alan Bonander Humanitarian Award". Parkinson's Unity Walk. Retrieved 11 October 2014.
  5. "Americans in the Tour - Fun Facts, Questions, Answers, Information". Fun Trivia. Retrieved 11 October 2014.
  6. "Davis Phinney Inducted in 2001 for Modern Road & Track Competitor (Post-1975)". U.S. Bicycling Hall of Fame. Archived from the original on 9 October 2014. Retrieved 11 October 2014.
  7. Dan Koeppel. "Davis Phinney". Howtobefit.com. Retrieved 11 October 2014.
  8. "Sunflower Revolution Marks 10 Years of Memories". UC Neuroscience Institute, Cincinnati. Retrieved 11 October 2014.
  9. "Davis Phinney" Archived 2014-10-09 at the Wayback Machine, Speaker Biographies, Windrose Media
  10. "The Victory Summit: A Davis Phinney Foundation Event". HealthSouth hospital, Virginia. 19 May 2012.
  11. "Cycling legend Davis Phinney's Foundation launches new resource to encourage living well with Parkinson's disease", Movement and Neuroperformance Center, Colorado
  12. "Nationwide Support Groups Join Davis Phinney Foundation's "Living Well Challenge" With First Webinar Focused on How to Live Well With Parkinson's Disease". PR Newswire. 1 June 2011.
  13. "Cycling Legend Davis Phinney's Foundation Launches New How-To DVD On 'Parkinson's Exercise Essentials'", PR Newswire, 19 September 2013
  14. "DPF Funded Research". Davis Phinney Foundation. 2009.
  15. "Join The Davis Phinney Foundation in the Parkinson's fight - Get Involved!". Davis Phinney Foundation. Retrieved 11 October 2014.
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