Alison Singer

Alison Singer is an autism advocate and the president of the Autism Science Foundation (ASF). She has also served on the IACC.[2] She was formerly an executive vice president of Autism Speaks and as a vice president at NBC.

Alison Singer
Born1966 (age 5354)
NationalityAmerican
Alma materHarvard University (MBA)
OccupationExecutive Director
Known forAutism Science Foundation
Websitewww.autismsciencefoundation.org

Research and advocacy

Singer started the ASF after resigning from Autism Speaks in 2009, due to her view that they should not spend money on studying the scientifically discredited link between MMR vaccine and autism.[3][4] She discourages their portrayal of a false balance on this issue. Singer has been described as a strong candidate for combating the perception of a link between autism and vaccines. At Autism Speaks, she was in a far more influential position, and helped the organization become well-known.[5][6]

She was profiled by the Harvard Business School in an alumni profile, commending her on building a "pipeline of scientists" to research autism. She claims that HBS gave her the skills needed to run the ASF nonprofit.[7]

Singer was inspired to fund autism research based on the negative experiences of her brother with autism who was institutionalized, and taking care of a severely autistic daughter. Her daughter works with Applied Behavior Analysis therapists, and needs constant care.[8]

Singer also serves on the board of the Marcus Autism Center at Emory, the Yale Child Study Center, the executive board of the Seaver Autism Center at the Icahn School of Medicine and the executive board of the Autism Research Center at the University of North Carolina at Chapel Hill. She will receive an honorary degree from Emory University in May 2020.[9]

Views on autism and neurodiversity

Singer claims that she supports some of the goals of autism advocates, but still advocates for medical research on autism.[10] She says that neurodiversity often takes away funds from severely autistic individuals.[11] Singer has also advocated for more media awareness of severe autism.[12]

Autism Every Day controversy

Autism Speaks sponsored and distributes the short film Autism Every Day, produced by Lauren Thierry and Eric Solomon.[13] Alison Singer, who was in the film, was reportedly criticized for a scene in which she said that when faced with having to place the girl in a school that she deemed to be terrible, she contemplated driving her car off a bridge with her child in the car. She additionally expressed this view in the presence of her autistic daughter.[14] Thierry said that these feelings were not unusual among non-autistic mothers of autistic children.[15] According to the book Battleground: The Media, Thierry instructed the families she interviewed not to do their hair, vacuum or have therapists present, and appeared with her film at homes crew without preliminary preparations, in order to authentically capture the difficulties of life with autistic children, such as autistic children throwing tantrums or physically struggling with parents.[14][15]

In 2009, Singer responded by claiming that she made this comment because the New York State Department of Health recommended that her autistic daughter be placed in a school with very poor conditions, and did not want her daughter to suffer there. However, she regretted phrasing her concerns in that manner. Singer also claimed that she reconciled with autism advocates to some extent, but still advocates for medical research on autism.[10]

gollark: There's a gpu.js thing which bodges it with texture output.
gollark: If someone asks, they're probably confused.
gollark: ... then don't claim to be serious?
gollark: *probably is*
gollark: *can't tell if sarcasm or not*

References

  1. "WEDDINGS; Alison L. Tepper, Daniel M. Singer". The New York Times. 3 July 1994. Retrieved 7 March 2020.
  2. Wallenstein, Joanne. "School Board Candidate Alison Singer Brings a Wealth of Experience to the Table". Scarsdale. Retrieved 7 March 2020.
  3. Blum, Debra E. (20 August 2009). "New Autism Charity Hopes to Carve Out Its Niche, Despite Tough Times". The Chronicle of Philanthropy. Retrieved 13 March 2020.
  4. Donvan, John; Zucker, Caren (2016). In a Different Key: The Story of Autism. Crown. pp. 486–491. ISBN 978-0-307-98568-2. Retrieved 13 March 2020.
  5. Plait, Phil. "Alison Singer: autism hero". Discover Magazine. Retrieved 7 March 2020.
  6. Luscombe, Richard (25 January 2009). "Charity chief quits over autism row". The Observer. Retrieved 7 March 2020.
  7. Radsken, Jill. "Making Lives Better". HBS Alumni. Retrieved 7 March 2020.
  8. Wadman, Meredith (November 2011). "Autism's fight for facts: A voice for science". Nature. 479 (7371): 28–31. doi:10.1038/479028a. PMID 22051658. Retrieved 7 March 2020.
  9. Foundation, Autism Science (26 February 2020). "Autism Science Foundation Co-Founder and President Alison Singer to Receive Honorary Degree from Emory University". GlobeNewswire News Room. Retrieved 7 March 2020.
  10. Singer, Alison (9 September 2009). "Speaking Out About 'Autism Every Day'". ASF Blog. Retrieved 29 February 2020.
  11. Lutz, Amy S. F. (16 January 2013). "Controversy and Curious Case Histories in the Autism Community". Slate Magazine. Retrieved 8 March 2020.
  12. Singer, Alison (7 November 2017). "Portrayals of autism on television don't showcase full spectrum". Spectrum. Retrieved 8 March 2020.
  13. Moore AS (21 January 2007). "Hard-hitting look at autism is being shown at Sundance". New York Times. Retrieved 16 November 2008.
  14. Andersen, Robin (2008). Battleground: The Media. 1. Westport, Connecticut: Greenwood Press. pp. 127–128. ISBN 978-0-313-34168-7. LCCN 2007032454. OCLC 230095012.
  15. Liss J (2006-07-11). "Autism: the art of compassionate living". WireTap. Archived from the original on 2008-05-23. Retrieved 2008-03-21.
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