List of biobanks

A biobank is a physical place which stores biobank specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This page contains a list of biobanks.

Classification

Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.

Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease.[1] Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.[2]

This list is incomplete; you can help by expanding it.
List of biobanks
Biobank Affiliation Focus Type Continent Founding Notes
All of Us Population non-profit North America
Autism Genetic Resource Exchange Autism Speaks Autism non-profit North America and Asia
Avon Longitudinal Study of Parents and Children University of Bristol non-profit Europe 1990 [3][4]
Canadian Biosample Repository University of Alberta non-profit North America
Coriell Institute for Medical Research Genetic Disorders, rare diseases, Stem Cells non-profit North America 1953
CARTaGENE biobank Centre hospitalier universitaire Sainte-Justine non-profit North America 2009 [5][6]
Cooperative Human Tissue Network Cancer government North America 1987
DeCODE genetics commercial Europe [7]
Estonian Genome Project University of Tartu non-profit Europe 2000
EuroBioBank rare diseases non-profit Europe
FINBB Population non-profit Europe [8]
FinnGen population, disease focused Public-private Europe 2017 [9]
Generation Scotland NHS Scotland government Europe 1999 [10][11]
Genomics England Rare diseases, cancer Public-private Europe 2013 [12]
HUNT Biobank Norwegian University of Science and Technology non-profit Europe 2002
Million Veterans Project Veterans non-profit North America
nPOD University of Florida, JDRF Diabetes non-profit North America 2007 [13]
PATH Biobank Breast cancer non-profit Europe 2002
The Malaysian Cohort National University of Malaysia non-profit Asian 2003 http://www.ukm.my/mycohort
UK Biobank non-profit Europe 2006 [14]
Kaiser Permanente Research Bank Kaiser Permanente Population North America 2016[15] [16]

References
  1. Bevilacqua, G.; Bosman, F.; Dassesse, T.; Höfler, H.; Janin, A.; Langer, R.; Larsimont, D.; Morente, M. M.; Riegman, P.; Schirmacher, P.; Stanta, G.; Zatloukal, K.; Caboux, E.; Hainaut, P. (2010). "The role of the pathologist in tissue banking: European Consensus Expert Group Report". Virchows Archiv. 456 (4): 449–454. doi:10.1007/s00428-010-0887-7. PMC 2852521. PMID 20157825.
  2. Riegman, P. H. J.; Morente, M. M.; Betsou, F.; De Blasio, P.; Geary, P.; Marble Arch International Working Group on Biobanking for Biomedical Research (2008). "Biobanking for better healthcare". Molecular Oncology. 2 (3): 213–222. doi:10.1016/j.molonc.2008.07.004. PMC 5527804. PMID 19383342.
  3. Boyd, A.; Golding, J.; Macleod, J.; Lawlor, D. A.; Fraser, A.; Henderson, J.; Molloy, L.; Ness, A.; Ring, S.; Davey Smith, G. (16 April 2012). "Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children". International Journal of Epidemiology. 42 (1): 111–127. doi:10.1093/ije/dys064. PMC 3600618. PMID 22507743.
  4. Levitt, Mairi (2011). "Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?". Health Care Analysis. 19 (3): 220–230. doi:10.1007/s10728-011-0193-9. PMID 21915714.
  5. Awadalla, Philip; Catherine Boileau; Yves Payette; Youssef Idaghour; Jean-Philippe Goulet; Bartha Knoppers; Pavel Hamet; Claude Laberge (October 15, 2012). "Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics" (PDF). International Journal of Epidemiology. 42 (5): 1285–99. doi:10.1093/ije/dys160. PMID 23071140. Retrieved 3 April 2013.
  6. "Cartagene". cartagene.qc.ca. Retrieved 3 April 2013.
  7. "From Genes to Drugs". decode.com. deCODE genetics. Archived from the original on 2008-05-09. Retrieved 2008-05-04.
  8. "https://finbb.fi/". Retrieved 2019-11-23. External link in |title= (help)
  9. "FinnGen-tutkimushanke vie suomalaiset löytöretkelle genomitietoon | Drupal". finngen.fi. Retrieved 2019-11-23.
  10. Smith BH, Campbell H, Blackwood D, et al. (2006). "Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability". BMC Medical Genetics. 7: 74. doi:10.1186/1471-2350-7-74. PMC 1592477. PMID 17014726.
  11. Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ (February 2009). "Some principles and practices of genetic biobanking studies". The European Respiratory Journal. 33 (2): 419–25. doi:10.1183/09031936.00043508. PMID 19181915.
  12. "Genomics England | 100,000 Genomes Project". Retrieved 2019-11-23.
  13. "JDRF nPOD | Network for Pancreatic Organ Donors with Diabetes". jdrfnpod.org. Retrieved 2016-09-22.
  14. "UK Biobank". Retrieved 2019-11-23.
  15. "Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery". Kaiser Permanente. 11 April 2018.
  16. "Kaiser Permanente Research Bank". Kaiser Permanente. Retrieved 8 November 2018.
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